Efforts to examine the utility of alternate modalities for genetic results disclosure has widespread implications for how precision medicine research might yield direct health benefits for study participants. This study will examine the efficacy of an online self-guided program to return genetic results to a racial minority cohort population. Study results will provide empirical evidence on the effectiveness of alternate modalities for genetic results return, inform ongoing efforts to establish scalable approaches for effective return of genetic research results, and increase access to personal health information among African American women.
Age range
40 Years
Sex
FEMALE
See this in plain English?
AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Bring these to your next appointment. They're a starting point for a shared conversation — not a sign you qualify or a recommendation to enrol.
Generated to help you prepare — always confirm anything about your own eligibility and care with the study team and your doctor.
The trial coordinator is the person who runs the study day to day. These cover the practical side — logistics, costs, and what taking part would actually mean for your life. The study team confirms whether you meet the criteria; these are questions to ask, not a sign you qualify.
A starting point for the conversation — always confirm anything about your own eligibility, costs, and care with the study team and your doctor.
Number of participant that decide to learn genetic results at 6 weeks
Timeframe: 6 weeks
Number of participant that decide to learn genetic results at 6 months
Timeframe: 6 months
Change from baseline in breast cancer genetics knowledge based on questionnaire at responses at 6 weeks
Timeframe: Baseline, 6 weeks
Change in baseline depression at 6 weeks
Timeframe: Baseline, 6 weeks
Depression at 6 months
Timeframe: 6 months
Depression at 12 months
Timeframe: 12 months
Change in baseline anxiety at 6 weeks
Timeframe: Baseline, 6 weeks
Anxiety at 6 months
Timeframe: 6 months
Anxiety at 12 months
Timeframe: 12 months
Participant distress from cancer risk assessment (test-specific distress) at 6 weeks
Timeframe: 6 weeks
Participant distress from cancer risk assessment (test-specific distress) at 6 months
Timeframe: 6 months
Participant distress from cancer risk assessment (test-specific distress) at 12 months
Timeframe: 12 months
Participant uncertainty from cancer risk assessment at 6 weeks
Timeframe: 6 weeks
Participant uncertainty from cancer risk assessment at 6 months
Timeframe: 6 months
Participant uncertainty from cancer risk assessment at 12 months
Timeframe: 12 months