Efforts to examine the utility of alternate modalities for genetic results disclosure has widespread implications for how precision medicine research might yield direct health benefits for study participants. This study will examine the efficacy of an online self-guided program to return genetic results to a racial minority cohort population. Study results will provide empirical evidence on the effectiveness of alternate modalities for genetic results return, inform ongoing efforts to establish scalable approaches for effective return of genetic research results, and increase access to personal health information among African American women.
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Number of participant that decide to learn genetic results at 6 weeks
Timeframe: 6 weeks
Number of participant that decide to learn genetic results at 6 months
Timeframe: 6 months
Change from baseline in breast cancer genetics knowledge based on questionnaire at responses at 6 weeks
Timeframe: Baseline, 6 weeks
Change in baseline depression at 6 weeks
Timeframe: Baseline, 6 weeks
Depression at 6 months
Timeframe: 6 months
Depression at 12 months
Timeframe: 12 months
Change in baseline anxiety at 6 weeks
Timeframe: Baseline, 6 weeks
Anxiety at 6 months
Timeframe: 6 months
Anxiety at 12 months
Timeframe: 12 months
Participant distress from cancer risk assessment (test-specific distress) at 6 weeks
Timeframe: 6 weeks
Participant distress from cancer risk assessment (test-specific distress) at 6 months
Timeframe: 6 months
Participant distress from cancer risk assessment (test-specific distress) at 12 months
Timeframe: 12 months
Participant uncertainty from cancer risk assessment at 6 weeks
Timeframe: 6 weeks
Participant uncertainty from cancer risk assessment at 6 months
Timeframe: 6 months
Participant uncertainty from cancer risk assessment at 12 months
Timeframe: 12 months