Autoimmune necrotizing myopathies (AINM) in adult patients are characterized by severity of muscle damage, presence of necrosis with little inflammation on muscle biopsy and anti-HMGCR or anti-SRP auto-antibodies. Data on AINM in children are currently lacking. The purpose of this study is to specify the characteristics at AINM diagnosis, treatments and evolution of juvenile AINM with anti-HMGCR or anti-SRP antibodies.
Sex
ALL
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A starting point for the conversation — always confirm anything about your own eligibility, costs, and care with the study team and your doctor.
Type of muscle involvment
Timeframe: At diagnosis
Type of cutaneous involvment
Timeframe: At diagnosis
Other clinical manifestations
Timeframe: At diagnosis
Blood CK level
Timeframe: At diagnosis
Histology
Timeframe: At diagnosis
Histology
Timeframe: At diagnosis
MMT score
Timeframe: At diagnosis
CMAS score
Timeframe: At diagnosis