CompletedNot Applicable

Education Tools to Support Pediatric Survivor Care

United States89 participantsStarted 2022-06-07

Plain-language summary

This study aims to evaluate the impact of electronic educational materials on adolescent and young adult (AYA) survivors' knowledge about late effects, perceived benefits, self-efficacy, and intentions to engage in lifelong survivor care.

Who can participate

Age range18 Years – 25 Years

SexALL

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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

Inclusion Criteria: * Patients must be 18-25 years of age, * Diagnosed with cancer at ≤ 18 years of age, * ≥ 2 years since the last cancer treatment, * seen at least once in the Aflac Cancer Survivor Program (CSP) in the past 2 years or transitioned out of the Aflac CSP to adult survivor care since 2013. Exclusion Criteria: * Patients will be excluded from participation in the study if the participant is non-English speaking. * Young adult survivors who are cognitively impaired and unable to complete the questionnaires. * Participants that do not consent to the recording of their interviews.

What they're measuring

Survivor Care Knowledge Scale

Timeframe: Baseline, 2 weeks post-intervention

Trial details

NCT IDNCT04257058

SponsorEmory University

Sponsor typeOTHER

Study typeINTERVENTIONAL

Primary completion2024-04-13

Results submitted2025-04-03

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