With the on-going presence of a chronic illness, daily immunosuppressive medications, and the need for continuous medical supervision, pediatric transplant recipients face considerable psychosocial stresses. Treatment nonadherence is a major issue in pediatric transplantation and can lead to increased rates of hospitalization, rejection episodes, graft loss and death. An online peer support mentorship program (iPeer2Peer) is proposed as one intervention that could enhance patient care management, increase treatment adherence, reduce social isolation and improve health outcomes for this highly vulnerable population. The proposed trial will determine 1) implementation outcomes of the iPeer2Peer intervention in terms of: (a) feasibility and adoption, (b) acceptability and appropriateness and (c) level of engagement with the program, and 2) effectiveness of the iPeer2Peer intervention on improving health outcomes including disease self-management skills, treatment adherence, quality of life, perceived social support, stress and coping.
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Acceptability: Semi-structured Interview (Mentees)
Timeframe: 15 weeks after baseline/immediately after the intervention
Acceptability: Semi-structured Interview (Mentors)
Timeframe: Study completion, an average of 1 year
Adoption (Mentees)
Timeframe: 15 weeks after baseline/immediately after the intervention
Adoption (Mentors)
Timeframe: Study completion, an average of 1 year
Adoption
Timeframe: Mentees - 12 weeks post-program completion; Mentors - study completion, an average of 1 year
Adoption
Timeframe: Mentees - 12 weeks post-program completion; Mentors - study completion, an average of 1 year
Feasibility: Semi-structured Interview (Mentees)
Timeframe: 15 weeks after baseline/immediately after the intervention
Feasibility: Semi-structured Interview (Mentors)
Timeframe: Study completion, an average of 1 year
Feasibility: Accrual and dropout rates
Timeframe: Mentees - 12 weeks post-program completion; Mentors - study completion, an average of 1 year
Feasibility: Compliance with iPeer2Peer program (Mentees)
Timeframe: 12 weeks post-program completion
Feasibility: Compliance with iPeer2Peer program (Mentors)
Timeframe: Study completion, an average of 1 year
Appropriateness (Mentees)
Timeframe: 15 weeks after baseline/immediately after the intervention
Appropriateness (Mentors)
Timeframe: Study completion, an average of 1 year
Level of Engagement (Mentees)
Timeframe: 15 weeks after baseline/immediately after the intervention
Level of Engagement (Mentors)
Timeframe: Study completion, an average of 1 year