This prospective observational study aims to describe the outcome for patients with persistent or chronic critical illness treated at Remeo, a clinic specialized for patients in need of prolonged intensive care and intensive care rehabilitation in Sweden. Patients' disease characteristics and the treatment in multidisciplinary patient centered teams for intensive care, weaning from mechanical ventilation and simultaneous rehabilitation will be described. Patients will be followed one year after discharge to document health related quality of life, physical function, frailty, mental illness and used health care resources.
Age range
16 Years
Sex
ALL
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Generated to help you prepare — always confirm anything about your own eligibility and care with the study team and your doctor.
The trial coordinator is the person who runs the study day to day. These cover the practical side — logistics, costs, and what taking part would actually mean for your life. The study team confirms whether you meet the criteria; these are questions to ask, not a sign you qualify.
A starting point for the conversation — always confirm anything about your own eligibility, costs, and care with the study team and your doctor.
Change in mechanical ventilation status
Timeframe: Assessed at admittance and immediately after discharge from unit
Change in tracheostomy status
Timeframe: Assessed at admittance and immediately after discharge from unit
In-patient mortality and mortality
Timeframe: Assessed immediately after discharge from unit
Mortality during 12 months follow-up after discharge
Timeframe: Assessed 12 months after discharge
Health related quality of Life assessed by the Rand 36-Item Health Survey (RAND36)
Timeframe: 3 months after discharge from unit
Health related quality of Life assessed by the Rand 36-Item Health Survey (RAND36)
Timeframe: 6 months after discharge from unit
Health related quality of Life assessed by the Rand 36-Item Health Survey (RAND36)
Timeframe: 12 months after discharge from unit
Health related quality of Life assessed by EuroQoL 5-dimension 5-level (EQ-5D-5L)
Timeframe: 3 months after discharge from unit
Health related quality of Life assessed by EuroQoL 5-dimension 5-level (EQ-5D-5L)
Timeframe: 6 months after discharge from unit
Health related quality of Life assessed by EuroQoL 5-dimension 5-level (EQ-5D-5L)
Timeframe: 12 months after discharge from unit
Independence in activities of daily living assessed by Katz Index of Independence in Activities of Daily Living (Katz ADL)
Timeframe: At admission to unit
Independence in activities of daily living assessed by Katz Index of Independence in Activities of Daily Living (Katz ADL)
Timeframe: Immediately before decannulation
Independence in activities of daily living assessed by Katz Index of Independence in Activities of Daily Living (Katz ADL)
Timeframe: Immediately before discharge from unit
Independence in activities of daily living assessed by Katz Index of Independence in Activities of Daily Living (Katz ADL)
Timeframe: 6 months after discharge from unit
Independence in activities of daily living assessed by Katz Index of Independence in Activities of Daily Living (Katz ADL)
Timeframe: 12 months after discharge from unit