Communication Training for Caregivers In Advanced Care Planning (NCT04171895) | Clinical Trial Compass
CompletedNot Applicable
Communication Training for Caregivers In Advanced Care Planning
United States49 participantsStarted 2019-11-19
Plain-language summary
The purpose of this research study is to develop and test a new communication training to help caregivers communicate more effectively with their loved ones and healthcare professionals about advanced care planning.
Who can participate
Age range18 Years
SexALL
See this in plain English?
AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Inclusion Criteria:
Part 1:
Informal caregivers:
* Current self-reported informal cancer caregivers (IC) to a patient with a primary malignant brain tumor as per clinician judgment or as per EMR
* English fluency: Self-report by participant identifying English as the preferred language for healthcare, and self-reported degree of fluency as speaking English "Very well."
* age ≥ 18
* has access to a computer or smartphone with a webcam and internet connection
Patients:
* English-speaking as per EMR
* Able to provide informed consent, a determination that will be made in assistance with the patient's medical team.
Part II:
Informal caregivers:
* Current self-reported IC to an MSK patient with a (1) primary malignant brain tumor or (2) leptomeningeal metastasis of a solid tumor, as per clinician judgment or as per EMR.
* English fluency: Self-report by identifying English as the preferred language for healthcare, and self-reported degree of fluency as speaking English "Very well."
* Age \>18 as per self report
* Access to a computer or smartphone with a webcam and internet connection as per self report
Exclusion Criteria:
* None