UnknownNot Applicable

Multicenter Registry for Patients With Childhood.Onset Craniopharyngioma, Xanthogranuloma, Cysts of Rathke's Pouch, Meningioma, Pituitary Adenoma, Arachnoid Cysts

Germany90 participantsStarted 2019-10-01

Plain-language summary

KRANIOPHARYNGEOM Registry 2019 will prospectively collect and descriptively analyse data on diagnostics, treatment, and follow-up of patients with craniopharyngioma. In continuation of preceding studies also patients with xanthogranuloma, meningioma, pituitary adenoma, prolactinoma and cystic intracranial malformations will be registered.

Who can participate

Age range1 Day – 18 Years

SexALL

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Inclusion criteria

✓. Diagnosed with craniopharyngioma for the first time
✓. Age at diagnosis 18 years or less of age
✓. Agreement from patient's parents or legal guardian as well as the patient

Exclusion criteria

✕. Age at diagnosis over 18 years of age
✕. Diagnosis different from craniopharyngioma

What they're measuring

Overall Survival

Timeframe: 3 years follow-up

Progression-free Survival (PFS)

Timeframe: 3 years follow-up

Trial details

NCT IDNCT04158284

SponsorKlinikum Oldenburg gGmbH

Sponsor typeOTHER

Study typeOBSERVATIONAL

Primary completion2024-06-30

Contact for this trial

Hermann L Mueller, MD

+49 441 403 mueller.hermann@klinikum-oldenburg.de

View on ClinicalTrials.gov More Craniopharyngioma trials