CompletedNot Applicable

European Registry for Myeloproliferative Neoplasms (MPNs) - Update of ERNEST Study

Italy, Spain1,010 participantsStarted 2019-10-08

Plain-language summary

The Fondazione per la Ricerca Ospedale di Bergamo (FROM) decided to propose and promote the completion of ERNEST registry: the aim of the project is to obtain up-to-date estimates of clinical outcome of these patients in primary and secondary Myelofibrosis that have been included in the 'original' ERNEST study. The last was conducted between 2012 and beginning of 2015 including 1292 patients with Myelofibrosis, but it was interrupted in 2015 because of bankruptcy of the previous sponsor.

Who can participate

Age range18 Years

SexALL

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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

Inclusion Criteria: * previous registration in the ERNEST registry (2012 - 2014) * diagnosis of MF performed between January 2001 and 2012 December * Signed informed consent to continue participation in the registry Exclusion Criteria: None

What they're measuring

Number of death

Timeframe: 18 years

Trial details

NCT IDNCT04153305

SponsorFROM- Fondazione per la Ricerca Ospedale di Bergamo- ETS

Sponsor typeOTHER

Study typeOBSERVATIONAL

Primary completion2020-12-31

View on ClinicalTrials.gov More Myelofibrosis trials