This trial studies how well a web-based legacy intervention works in improving the quality of life in caregivers and younger patients with cancer that has come back (recurrent) or does not respond to treatment (refractory). Legacy-making, defined as doing or saying something to be remembered, may reduce the suffering of children with cancer and their caregivers. Currently, there is little information about what kinds of legacy-making activities are helpful from the perspective of children. Using a web-based digital storytelling intervention, this study may help researchers examine what children think about these legacy-making activities and what kinds of activities might be helpful to them.
See this in plain English?
AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Child coping strategies
Timeframe: Change between baseline and 2 months post-baseline.
Child adjustment
Timeframe: Change between baseline and 2 months post-baseline.
Child adjustment
Timeframe: Change between baseline and 2 months post-baseline.
Parent adjustment
Timeframe: Change between baseline and 2 months post-baseline
Parent adjustment
Timeframe: Change between baseline and 2 months post-baseline.
Parent coping strategies
Timeframe: Change between baseline and 2 months post-baseline