Parkinson's disease (PD) affects 1% to 2% of the US population over age 60, and its prevalence is increasing as the population ages. The proposed research will establish the natural evolution of the social lives of people with Parkinson's disease and their families and its relationship to health outcomes, and thus has the potential to significantly advance Parkinson's disease research and evidence-based neurological nursing and rehabilitation. The project develops the new construct of social self-management of chronic disease and results will inform the development of new interventions aimed at supporting social integration and preventing isolation and loneliness in people living with Parkinson's disease.
See this in plain English?
AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Activity Retention Over Time
Timeframe: 3 Years
The Chronic Illness Resources Survey (CIRS)
Timeframe: 3 Years
Social Network Composition
Timeframe: 3 Years
Contact Frequency
Timeframe: 3 years
Support Exchange
Timeframe: 3 Years
Social Isolation Domain of the Nottingham Health Profile (NHP)
Timeframe: 3 Years
The Positive Social Interaction subscale items of the Medical Outcomes Study: Social Support Survey (MOS)
Timeframe: 3 Years
The Stigma Scale for Chronic Illness (SSCI)
Timeframe: 3 Years
The Interpersonal Communication Rating Protocol: Individual Expressive Behavior (Parkinson's Disease Version) (ICRP-IEB)
Timeframe: 3 Years
Qualitative Self-Management Interview
Timeframe: 3 Years