Currently almost 5 million Americans suffer from the distressing symptoms related to dementia and this number that will triple by 2050. The overall goals of the proposed project are to evaluate, in community dwelling Alzheimer's Disease Research Center participants the benefits of a 12-month nurse-led early palliative intervention on symptoms, quality of life, health care resource use. The relevance of this research to public health is that there is an urgent need to improve the palliative care of persons with dementia living in the community. This study will contribute substantially to that effort.
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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
To identify the number of participants who express supportive care needs in both arms.
Timeframe: Day 0, 4 months, one year
Change in Zarit Caregiver Burden scores over time:
Timeframe: Day 0, 4 months, one year, 18 months
Completion of goals of care discussion and documentation of advance directives (AD) and the Physicians Orders for Life Sustaining Treatment (POLST) in the electronic health records.
Timeframe: Day 0, 4 months, one year, 18 months