Stopped: The planned sample size was 264; 43 participants completed follow-up. With significant start-up delays and recruitment curtailed by the COVID-19 pandemic, the limited feasibility to recruit our sample ultimately led to the early stop of the trial.
The purpose of this study is to find out if there is a benefit to using the MyREADY Transition\[TM\] BBD App for brain-based disabilities, compared to not using it. To do this, some of the participants in this study will use the MyREADY Transition\[TM\] BBD App and others will not use the App. Everyone will continue to get the same care they have been getting (their usual care). The study team wants to see how youth will use the MyREADY Transition\[TM\] BBD App as they are getting ready to leave the children's hospital or children's treatment centre. And, they want to see if it will help youth to be knowledgeable about their own health. The study team hopes to see youth taking steps to develop the skills so they become better managers of their health. For example, this would include knowing about their medication or knowing when to ask for help from parents/caregivers and health care providers.
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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Transition Readiness Assessment Questionnaire (TRAQ) Change
Timeframe: Baseline and 6-Month Visit