CompletedNot Applicable

Acceptability of Palliative Care in Parkinson Disease Care

United States20 participantsStarted 2018-11-16

Plain-language summary

This study will assess the feasibility of using specific criteria to standardize the referral of individuals with Parkinson disease to a group of medical providers known as palliative care specialists. Palliative care specialists provide supportive care to individuals living with serious illnesses. The specialty focuses on providing relief from the symptoms and stress of serious illness.

Who can participate

Age range18 Years

SexALL

See this in plain English?

AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

Subjects with Parkinson disease: Inclusion Criteria: * Diagnosis of idiopathic PD confirmed as most likely diagnosis with participant's treating provider * 18 years of age or older * Participant or care partner able to provide informed consent * Presence of one or more of the following: Uncontrolled symptoms (over prior week): * Depression * Pain * Fatigue Critical events (over prior 6 months): * ≥3 falls * Unintended weight loss * Wheelchair dependence (\>50% of time) Exclusion Criteria: * Diagnosis of atypical or secondary parkinsonism * Outpatient palliative care visit scheduled or within the prior 6 months of the screening visit Subjects who are care partners: Inclusion Criteria: * Care partner of enrolled participant in the study * 18 years of age or older * Able to provide informed consent Exclusion Criteria: • No care partner specific exclusion criteria

What they're measuring

Proportion of enrolled participants who have at least 1 visit with a palliative care provider within 3 months of referral

Timeframe: 3 months

Trial details

NCT IDNCT03697434

SponsorUniversity of Rochester

Sponsor typeOTHER

Study typeINTERVENTIONAL

Primary completion2019-06-01

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