The Swiss Primary Ciliary Dyskinesia (PCD) Registry is a national patient registry that collects information on diagnosis, symptoms, treatment and follow-up of patients with PCD in Switzerland and provides data for national and international monitoring and research.
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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Height
Timeframe: every 3 months up to 80 years
BMI
Timeframe: every 3 months up to 80 years
Lung function measurements
Timeframe: every 3 months up to 80 years
Measurement of nasal nitric oxide using breath analyzer
Timeframe: at study entry (in case patient is <5 years old at study entry, then the outcome will be assessed at age 5
Cilia ultrastructure identified using electron microscopy analysis
Timeframe: at study entry
Ciliary beat frequency and beat pattern using video microscopy analysis
Timeframe: at study entry
Microbiological culture of respiratory samples
Timeframe: every 3 months up to 80 years
Antibiotic resistance of microbes isolated in microbiological cultures
Timeframe: every 3 months up to 80 years
Chest computed tomography
Timeframe: every 3 months up to 80 years
Sinus computed tomography
Timeframe: every 3 months up to 80 years
Vital status
Timeframe: every 3 months up to 80 years
Clinical symptoms frequency
Timeframe: once a year up to 80 years