National Register Studies in Thoracic Surgery (NCT03567538) | Clinical Trial Compass
Active — Not RecruitingNot Applicable
National Register Studies in Thoracic Surgery
Sweden20,000 participantsStarted 2018-01-01
Plain-language summary
The overall project aim is to study risk and outcomes following thoracic surgery by cross-linking high-quality national Swedish health-data registers for population-based investigations of individual level clinically relevant patient data.
Who can participate
Age range
18 Years – 110 Years
Sex
ALL
See this in plain English?
AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Inclusion Criteria:
All adult patients who underwent thoracic surgery in Sweden during the study period
Exclusion Criteria:
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Questions worth asking your doctor
Bring these to your next appointment. They're a starting point for a shared conversation — not a sign you qualify or a recommendation to enrol.
1Since this is a registry study that's actively collecting data but no longer enrolling new participants, is there any way my surgical outcomes could still contribute to research like this, and does my doctor's hospital participate in similar national thoracic surgery registries?
2This study is tracking all-cause mortality after thoracic surgery for conditions like lung cancer and pulmonary metastasis — what does my doctor know about the survival outcomes being seen in real-world surgical registries like this one, and how do they compare to my specific situation?
3Since this is a national register study rather than a treatment trial, it's observational — how does my doctor use data from registries like this to inform decisions about whether surgery is the right approach for me versus other treatments?
4Given that this registry focuses on thoracic surgery outcomes for both primary lung cancer and pulmonary metastasis, how does my doctor determine which of those categories my case falls into, and does that distinction change what surgical approach they'd recommend?
5Are there active treatment trials my doctor would recommend I look into alongside observational registry data like this, so I can better understand both what outcomes look like and whether there are newer surgical or non-surgical options worth considering for my condition?
Generated to help you prepare — always confirm anything about your own eligibility and care with the study team and your doctor.
Questions for the trial coordinator
The trial coordinator is the person who runs the study day to day. These cover the practical side — logistics, costs, and what taking part would actually mean for your life. The study team confirms whether you meet the criteria; these are questions to ask, not a sign you qualify.
1What does taking part actually involve week to week — how many visits, where, and how long does each one take?
2What costs are covered by the study, and what might I have to pay for myself, including travel, parking, or time off work?
3What happens during screening, and what happens if the study team confirms I don't meet the criteria after those tests?
4Who pays for the scans, blood work, and other tests the trial requires — the study, my insurance, or me?
5How will being in the trial affect my regular care, and will my own doctor stay informed and involved?
6Can I leave the trial at any point if I change my mind, and what would happen to my care if I do?
A starting point for the conversation — always confirm anything about your own eligibility, costs, and care with the study team and your doctor.