The iPCD Cohort is an international cohort that assembles available retrospective datasets and prospectively newly collected clinical and diagnostic data from patients suffering from primary ciliary dyskinesia (PCD) worldwide, to answer pertinent questions on clinical phenotype, disease severity, prognosis and effect of treatments in patients with this rare multiorgan disease.
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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Height
Timeframe: every 3 months up to 10 years
BMI
Timeframe: every 3 months up to 10 years
Lung function measurements
Timeframe: every 3 months up to 10 years
Diagnostic test results
Timeframe: at diagnosis/ study entry
Clinical symptoms and signs
Timeframe: every 3 months up to 10 years
Microbiology results
Timeframe: every 3 months up to 10 years
Imaging results
Timeframe: every 3 months up to 10 years