CompletedNot Applicable

Telemedicine in Spina Bifida Transition: A Pilot Study

United States24 participantsStarted 2018-06-01

Plain-language summary

The purpose of this study is to explore the feasibility and efficacy of using telemedicine to improve transition from pediatric to adult care in patients with spina bifida.

Who can participate

Age range13 Years – 25 Years

SexALL

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Inclusion Criteria: * Patients \>= 13 years with a diagnosis of spina bifida who are currently seen through the Children's of Alabama Multidisciplinary Spina Bifida Clinic Exclusion Criteria: * Patients without access to the internet.

What they're measuring

Transition preparedness

Timeframe: Baseline to 12 months

Health-related quality of life

Timeframe: Baseline to 12 months

Improvement in bowel management

Timeframe: Baseline to 12 months

Trial details

NCT IDNCT03466996

SponsorUniversity of Alabama at Birmingham

Sponsor typeOTHER

Study typeINTERVENTIONAL

Primary completion2020-09-01

View on ClinicalTrials.gov More Spina Bifida trials