CompletedNot Applicable

Engaging Siblings of Adults With Autism in Future Planning

United States19 participantsStarted 2017-02-01

Plain-language summary

The goal of this pilot study was to develop and obtain preliminary feasibility and effectiveness data of a telehealth program (Siblings FORWARD) to help siblings of autistic adults work with their families to plan for the future. The main questions it aimed to answer were: * Is the Siblings FORWARD program feasible to implement via telehealth in the community setting? * Do siblings benefit from participation in the Siblings FORWARD program? The Siblings FORWARD program involves 6-7 individualized telehealth sessions with a trained community facilitator. Researchers compared participation in the Siblings FORWARD program to an information-only control condition.

Who can participate

Age range18 Years

SexALL

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Exclusion criteria

✕Siblings will be excluded if they have an ASD diagnosis themselves or if they have any disability that would interfere with their ability to engage meaningfully in future planning for the autistic adult.
✕None

What they're measuring

Quality of Sibling Plan of Action

Timeframe: 4 months, 7 months

Trial details

NCT IDNCT03374072

SponsorBoston University Charles River Campus

Sponsor typeOTHER

Study typeINTERVENTIONAL

Primary completion2021-08-31

Results submitted2022-12-07

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