Primary Palliative Care for Patients With Advanced Hematologic Malignancies (NCT02992171) | Clinical Trial Compass
CompletedNot Applicable
Primary Palliative Care for Patients With Advanced Hematologic Malignancies
United States60 participantsStarted 2017-05-02
Plain-language summary
This study seeks to develop and pilot-test an oncology nurse-led care management intervention to meet the primary palliative care needs of patients with advanced hematologic malignancies.
Who can participate
Age range21 Years
SexALL
See this in plain English?
AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Participants will be (1) patients with advanced hematologic malignancies receiving care at a participating clinic; (2) their caregivers; (3) participating clinicians.
Patient:
Inclusion Criteria:
* adults (≥ 21 years old)
* Refractory or Recurrent hematologic cancer: lymphoma, leukemia, myeloma, amyloidosis (secondary manifestation myeloma \& AL Amyloidosis), and CML (CML can only be accelerated or blast phase)
* planning to receive ongoing care from a participating oncologist and willing to be seen at least monthly.
Exclusion criteria:
* chronic myeloid leukemia (CML) OTHER THAN accelerated or blast phase
* unable to read and respond to questions in English
* lacks decision-making capacity, as determined by the patient's oncologist
* unable to complete baseline interview
Caregiver
Inclusion Criteria:
* adults (≥ 21 years old)
* family member or friend of an eligible patient
Exclusion criteria:
* unable to read and respond to questions in English
* unable to complete the baseline interview (patients will be asked to select as caregiver the person who is most likely to accompany them to visits or help with their care should they need it)
Eligible clinicians will be oncology nurses and oncologists practicing at participating clinics.
What they're measuring
1
Successful enrollment of 30 patient-caregiver pairs