Peritoneal Dialysis Registration System (PERSIST) (NCT02989298) | Clinical Trial Compass
RecruitingNot Applicable
Peritoneal Dialysis Registration System (PERSIST)
China10,000 participantsStarted 2013-12
Plain-language summary
Brief Summary: The investigators are registering all PD patients at recruited hospitals and developing a PD database in China. Patients will be followed up every 3 months, and both baseline and follow-up information will be collected and input into the registration system. The patient survival, technical survival, peritonitis rate, longitudinal changes of residual renal function and peritoneum function, and quality of life for PD patients, etc, will be compared using the PD database.
Who can participate
Age range
18 Years
Sex
ALL
See this in plain English?
AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Bring these to your next appointment. They're a starting point for a shared conversation — not a sign you qualify or a recommendation to enrol.
1Since PERSIST is a registry study rather than a treatment trial, can you explain what actually happens to me if I enroll — will I receive any different care, or is it mainly about tracking my outcomes over time?
2This registry is measuring patient survival among people on peritoneal dialysis — what does my doctor think my own survival outlook looks like with PD compared to hemodialysis, given my specific situation?
3How long would I need to stay enrolled in this registry, and what kind of follow-up visits or data sharing would be expected of me throughout that time?
4Since this is listed as 'Phase NA,' meaning it's an observational study and not testing a new treatment, should I also be asking about any active treatment trials for ESRD that might be relevant to my care?
5What information from this registry would actually be shared back with me or my care team, and could participating in it influence the dialysis treatment decisions made for me?
Generated to help you prepare — always confirm anything about your own eligibility and care with the study team and your doctor.
Questions for the trial coordinator
The trial coordinator is the person who runs the study day to day. These cover the practical side — logistics, costs, and what taking part would actually mean for your life. The study team confirms whether you meet the criteria; these are questions to ask, not a sign you qualify.
1What does taking part actually involve week to week — how many visits, where, and how long does each one take?
2What costs are covered by the study, and what might I have to pay for myself, including travel, parking, or time off work?
3What happens during screening, and what happens if the study team confirms I don't meet the criteria after those tests?
4Who pays for the scans, blood work, and other tests the trial requires — the study, my insurance, or me?
5How will being in the trial affect my regular care, and will my own doctor stay informed and involved?
6Can I leave the trial at any point if I change my mind, and what would happen to my care if I do?
A starting point for the conversation — always confirm anything about your own eligibility, costs, and care with the study team and your doctor.