The Allied Cleft \& Craniofacial Quality-Improvement and Research Network (ACCQUIREnet) is a group of multidisciplinary cleft teams that have implemented a system for prospective collection of outcomes data, based on the ICHOM Standard Set for the Comprehensive Appraisal of Cleft Care, CLEFT-Q, and other outcomes instruments. Participating cleft teams may analyze clinical and psychosocial outcomes related to care of the child with cleft lip and/or palate (CL/P), compare its performance with those of other cleft centers, and identify opportunities for quality improvement.
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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Speech: intelligibility
Timeframe: ~5 years of age
Speech: intelligibility
Timeframe: ~8 years of age
Speech: intelligibility
Timeframe: ~12 years of age
Speech: intelligibility
Timeframe: ~22 years of age
Speech: velopharyngeal competence
Timeframe: ~5 years of age
Speech: velopharyngeal competence
Timeframe: ~8 years of age
Speech: velopharyngeal competence
Timeframe: ~12 years of age
Speech: velopharyngeal competence
Timeframe: ~22 years of age
Speech: articulation
Timeframe: ~5 years of age
Speech: articulation
Timeframe: ~8 years of age
Speech: articulation
Timeframe: ~12 years of age
Speech: articulation
Timeframe: ~22 years of age
Speech: patient-reported outcomes related to speech and speaking
Timeframe: ~8 years of age
Speech: patient-reported outcomes related to speech and speaking
Timeframe: ~12 years of age
Speech: patient-reported outcomes related to speech and speaking
Timeframe: ~22 years of age
Hearing: puretone average
Timeframe: ~5 years of age
Dental: dmft and DMFT scores
Timeframe: ~5 years of age
Dental: dmft and DMFT scores
Timeframe: ~12 years of age
Dental: dmft and DMFT scores
Timeframe: ~22 years of age
Dental: occlusion (Uses modifications of the GOSLON scale)
Timeframe: ~5 years of age
Dental: occlusion (Uses modifications of the Bauru scale)
Timeframe: ~5 years of age
Dental: occlusion (Uses modifications of the GOSLON scale)
Timeframe: ~12 years of age
Dental: occlusion (Uses modifications of the Bauru scale)
Timeframe: ~12 years of age
Dental: occlusion (Uses modifications of the GOSLON scale)
Timeframe: ~22 years of age
Dental: occlusion (Uses modifications of the Bauru scale)
Timeframe: ~22 years of age
Dental: patient-reported outcomes related to mastication
Timeframe: ~8 years of age
Dental: patient-reported outcomes related to mastication
Timeframe: ~12 years of age
Dental: patient-reported outcomes related to mastication
Timeframe: ~22 years of age
Dental: patient-reported outcomes related to oral health
Timeframe: ~8 years of age
Dental: patient-reported outcomes related to oral health
Timeframe: ~12 years of age
Dental: patient-reported outcomes related to oral health
Timeframe: ~22 years of age
Patient-reported outcomes related to eating/drinking
Timeframe: ~8 years of age
Patient-reported outcomes related to eating/drinking
Timeframe: ~12 years of age
Patient-reported outcomes related to eating/drinking
Timeframe: ~22 years of age
Breathing: Patient-reported outcomes related to nasal and oral breathing
Timeframe: ~8 years of age
Breathing: Patient-reported outcomes related to nasal and oral breathing
Timeframe: ~12 years of age
Breathing: Patient-reported outcomes related to nasal and oral breathing
Timeframe: ~22 years of age
Aesthetics: Patient-reported outcomes related to appearance
Timeframe: ~8 years of age
Aesthetics: Patient-reported outcomes related to appearance
Timeframe: ~12 years of age
Aesthetics: Patient-reported outcomes related to appearance
Timeframe: ~22 years of age
Aesthetics: Clinical assessment of nasolabial and facial aesthetics
Timeframe: ~2 years of age
Aesthetics: Clinical assessment of nasolabial and facial aesthetics
Timeframe: ~5 years of age
Aesthetics: Clinical assessment of nasolabial and facial aesthetics
Timeframe: ~8 years of age
Aesthetics: Clinical assessment of nasolabial and facial aesthetics
Timeframe: ~12 years of age
Aesthetics: Clinical assessment of nasolabial and facial aesthetics
Timeframe: ~22 years of age