The Allied Cleft \& Craniofacial Quality-Improvement and Research Network (ACCQUIREnet) is a group of multidisciplinary cleft teams that have implemented a system for prospective collection of outcomes data, based on the ICHOM Standard Set for the Comprehensive Appraisal of Cleft Care, CLEFT-Q, and other outcomes instruments. Participating cleft teams may analyze clinical and psychosocial outcomes related to care of the child with cleft lip and/or palate (CL/P), compare its performance with those of other cleft centers, and identify opportunities for quality improvement.
Age range
1 Day – 22 Years
Sex
ALL
See this in plain English?
AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Bring these to your next appointment. They're a starting point for a shared conversation — not a sign you qualify or a recommendation to enrol.
Generated to help you prepare — always confirm anything about your own eligibility and care with the study team and your doctor.
The trial coordinator is the person who runs the study day to day. These cover the practical side — logistics, costs, and what taking part would actually mean for your life. The study team confirms whether you meet the criteria; these are questions to ask, not a sign you qualify.
A starting point for the conversation — always confirm anything about your own eligibility, costs, and care with the study team and your doctor.
Speech: intelligibility
Timeframe: ~5 years of age
Speech: intelligibility
Timeframe: ~8 years of age
Speech: intelligibility
Timeframe: ~12 years of age
Speech: intelligibility
Timeframe: ~22 years of age
Speech: velopharyngeal competence
Timeframe: ~5 years of age
Speech: velopharyngeal competence
Timeframe: ~8 years of age
Speech: velopharyngeal competence
Timeframe: ~12 years of age
Speech: velopharyngeal competence
Timeframe: ~22 years of age
Speech: articulation
Timeframe: ~5 years of age
Speech: articulation
Timeframe: ~8 years of age
Speech: articulation
Timeframe: ~12 years of age
Speech: articulation
Timeframe: ~22 years of age
Speech: patient-reported outcomes related to speech and speaking
Timeframe: ~8 years of age
Speech: patient-reported outcomes related to speech and speaking
Timeframe: ~12 years of age
Speech: patient-reported outcomes related to speech and speaking
Timeframe: ~22 years of age
Hearing: puretone average
Timeframe: ~5 years of age
Dental: dmft and DMFT scores
Timeframe: ~5 years of age
Dental: dmft and DMFT scores
Timeframe: ~12 years of age
Dental: dmft and DMFT scores
Timeframe: ~22 years of age
Dental: occlusion (Uses modifications of the GOSLON scale)
Timeframe: ~5 years of age
Dental: occlusion (Uses modifications of the Bauru scale)
Timeframe: ~5 years of age
Dental: occlusion (Uses modifications of the GOSLON scale)
Timeframe: ~12 years of age
Dental: occlusion (Uses modifications of the Bauru scale)
Timeframe: ~12 years of age
Dental: occlusion (Uses modifications of the GOSLON scale)
Timeframe: ~22 years of age
Dental: occlusion (Uses modifications of the Bauru scale)
Timeframe: ~22 years of age
Dental: patient-reported outcomes related to mastication
Timeframe: ~8 years of age
Dental: patient-reported outcomes related to mastication
Timeframe: ~12 years of age
Dental: patient-reported outcomes related to mastication
Timeframe: ~22 years of age
Dental: patient-reported outcomes related to oral health
Timeframe: ~8 years of age
Dental: patient-reported outcomes related to oral health
Timeframe: ~12 years of age
Dental: patient-reported outcomes related to oral health
Timeframe: ~22 years of age
Patient-reported outcomes related to eating/drinking
Timeframe: ~8 years of age
Patient-reported outcomes related to eating/drinking
Timeframe: ~12 years of age
Patient-reported outcomes related to eating/drinking
Timeframe: ~22 years of age
Breathing: Patient-reported outcomes related to nasal and oral breathing
Timeframe: ~8 years of age
Breathing: Patient-reported outcomes related to nasal and oral breathing
Timeframe: ~12 years of age
Breathing: Patient-reported outcomes related to nasal and oral breathing
Timeframe: ~22 years of age
Aesthetics: Patient-reported outcomes related to appearance
Timeframe: ~8 years of age
Aesthetics: Patient-reported outcomes related to appearance
Timeframe: ~12 years of age
Aesthetics: Patient-reported outcomes related to appearance
Timeframe: ~22 years of age
Aesthetics: Clinical assessment of nasolabial and facial aesthetics
Timeframe: ~2 years of age
Aesthetics: Clinical assessment of nasolabial and facial aesthetics
Timeframe: ~5 years of age
Aesthetics: Clinical assessment of nasolabial and facial aesthetics
Timeframe: ~8 years of age
Aesthetics: Clinical assessment of nasolabial and facial aesthetics
Timeframe: ~12 years of age
Aesthetics: Clinical assessment of nasolabial and facial aesthetics
Timeframe: ~22 years of age