CompletedNot Applicable

Enhanced CJD Surveillance in the Older Population

United Kingdom30 participantsStarted 2016-01-19

Plain-language summary

The purpose of this study to investigate if cases of Creutzfeldt-Jakob Disease (CJD) and other forms of prion disease are being missed in older adults living within Lothian.

Who can participate

Age range65 Years

SexALL

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Inclusion Criteria: * Patients aged 65 years or above * Patients accessing NHS Lothian neurology and psychogeriatric services * Patients who have features atypical for the recognised forms of dementia * Appropriate informed consent Exclusion Criteria: * Patients aged below 65 at time of recruitment * Patients diagnosed with a clear alternative demonstrable pathology

What they're measuring

Evidence of prion disease pathology in the Lothian population, a description of the associated clinical/pathological and epidemiological features and referral characteristics, and how this compares with other cases of prion disease.

Timeframe: 4.5 years

Trial details

NCT IDNCT02629640

SponsorUniversity of Edinburgh

Sponsor typeOTHER

Study typeOBSERVATIONAL

Primary completion2022-03-31

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