CompletedNot Applicable

Impact of Vasculitis on Employment and Income

United States426 participantsStarted 2015-06

Plain-language summary

The purpose of this study is to learn about the impact of vasculitis on employment and income in patients with different systemic vasculitides. All patients enrolled in the Vasculitis Clinical Research Consortium (VCRC) Patient Contact Registry, living in USA or Canada, and followed for more than 1 year since the vasculitis diagnosis will be invited via email to participate in this study, based on an online survey.

Who can participate

Age range18 Years

SexALL

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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

Inclusion Criteria: * Diagnosis of a systemic vasculitis: VCRC Patient Contact Registry includes patients with Behcet's disease, CNS vasculitis, Cryoglobulinemic vasculitis (Cryoglobulinemia), eosinophilic granulomatosis with polyangiitis (Churg-Strauss) (CSS), giant cell (temporal) arteritis (GCA), granulomatosis with polyangiitis (Wegener's) (GPA), Henoch-Schönlein purpura (IgA vasculitis), microscopic polyangiitis (MPA), polyarteritis nodosa (PAN), Takayasu arteritis (TAK), and urticarial vasculitis. * Age ≥18 years old * Living in USA or Canada * Vasculitis diagnosis made ≥1 year ago * Language requirements: questionnaire will be in English only Exclusion Criteria: * Inability to provide informed consent and complete survey

What they're measuring

Percentages of patients with different types of vasculitis who report negative impact of the disease on employment status, productivity, and income.

Timeframe: one day

Trial details

NCT IDNCT02476292

SponsorUniversity of South Florida

Sponsor typeOTHER

Study typeOBSERVATIONAL

Primary completion2016-01

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