This is a prospective study through the NF clinic at Massachusetts General Hospital that will examine the relationship between psychosocial factors, health literacy, and satisfaction with the medical visit in adults with NF1, NF2, and Schwannomatosis. A total of 89 participants will be enrolled in the study.
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Patient Reported Outcomes Measurement Information System (PROMIS)
Timeframe: Baseline (pre-medical visit)
Functional, Communicative and Critical Health Literacy (FFFHL) scale
Timeframe: Baseline (pre-medical visit)
Medical Interview Satisfaction Scale (MISS)
Timeframe: Participants will be followed for the duration of their medical visit, an expected average of no more than 2 hours.
Consumer Assessment of Healthcare Providers and Systems (CAHPS) survey
Timeframe: Participants will be followed for the duration of their medical visit, an expected average of no more than 2 hours.