The Myotonic Dystrophy Family Registry (MDFR) is an online, patient-entered database that collects information on myotonic dystrophy (DM) to aid researchers in developing new, effective treatments and help identify participants for research studies and clinical trials.
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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Patient reported outcomes
Timeframe: 36 months