RecruitingNot Applicable

Pediatric Pulmonary Hypertension Network (PPHNet) Informatics Registry

United States2,500 participantsStarted 2014-10

Plain-language summary

Patients are being asked to be in this research study because medical researchers hope that by gathering information about a large number of children with pulmonary hypertension over time, their understanding of the disease process will increase and lead to better treatment. Investigators believe that pulmonary hypertension in children is different than pulmonary hypertension in adults and this study will help us understand those differences.

Who can participate

Age range1 Day – 21 Years

SexALL

See this in plain English?

AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

Inclusion Criteria: * The subject's age of onset of pulmonary hypertension must be prior to age 18 years * The person providing consent must be able to read either Spanish or English. * The subject (and/or parent/legal guardian) must be able to provide informed consent Exclusion Criteria: * Diagnosed with pulmonary hypertension after age 18 * Refusal to sign informed consent

What they're measuring

Time to clinical worsening

Timeframe: 12 months

Trial details

NCT IDNCT02249923

SponsorNew York Medical College

Sponsor typeOTHER

Study typeOBSERVATIONAL

Primary completion2030-12

Contact for this trial

Erika B Rosenzweig, MD

914-493-6160 Erika.BermanRosenzweig@wmchealth.org

View on ClinicalTrials.gov More Pulmonary Vascular Disease trials