CompletedNot Applicable

Educational Needs of Patients With Systemic Vasculitis

United States386 participantsStarted 2012-03

Plain-language summary

A cross-sectional study design and online questionnaire was used to assess the informational needs of patients with several different types of systemic vasculitis. Patients were recruited from within the Vasculitis Clinical Research Consortium (VCRC) online Patient Contact Registry1. Survey responses from participants in the VCRC Patient Contact Registry were compared to responses from a similar survey recently administered to patients within a United Kingdom (UK) based vasculitis support group (Vasculitis UK).

Who can participate

Age range18 Years

SexALL

See this in plain English?

AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

Inclusion Criteria: * Enrolled in the VCRC Contact Registry * Patient reported diagnosis of Behçets disease, Churg-Strauss Syndrome, CNS Vasculitis, Giant Cell Arteritis, granulomatosis with polyangiitis (Wegener's granulomatosis), Henoch-Schöenlein Purpura, Microscopic Polyangiitis, Polyarteritis Nodosa, Takayasu's Arteritis. * 18 years of age or older * English speaking Exclusion Criteria: * Inability to provide informed consent and complete survey

What they're measuring

Preferred method and component of education materials for patients with vasculitis

Timeframe: Up to 24 months from the last patient assessment received

Trial details

NCT IDNCT02190929

SponsorUniversity of South Florida

Sponsor typeOTHER

Study typeOBSERVATIONAL

Primary completion2014-02

View on ClinicalTrials.gov More Behcet's Disease trials