CompletedNot Applicable

Discharge to Home and Chronic Illness Care Pilot

United States20 participantsStarted 2014-06

Plain-language summary

The purpose of this study is to address a gap in knowledge needed for care of children with solid organ transplantation (SOT) and their parents by combining mHealth technology with an individualized family centered self-management intervention (referred to as myFAMI). This study is critical to the increased understanding of hospital to home transition and family management at home with the potential to transform the way clinicians approach the care of complex chronic illness children and families.

Who can participate

Age range18 Years – 90 Years

SexALL

See this in plain English?

AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

Inclusion Criteria: * parent's child has undergone a heart, kidney, or liver transplant and is being discharged home from the hospital * the parent is English speaking (to date the tools being used have been validated for English participants only) * parent is 18 years of age or older * patient is 17 years of age and younger. Exclusion Criteria: * presence of significant communication or cognitive impairment on the part of the parent that would preclude completion of questionnaires based on self-report * parent and child has experienced the discharge to home transition from a previous transplant.

What they're measuring

Evaluate the effectiveness of myFAMI on 30-day post-discharge outcomes.

Timeframe: 30 days following enrollment

Trial details

NCT IDNCT02165423

SponsorMedical College of Wisconsin

Sponsor typeOTHER

Study typeINTERVENTIONAL

Primary completion2018-10

View on ClinicalTrials.gov More Solid Organ Transplant trials