CompletedNot Applicable

Health-related Quality of Life in Rare Kidney Stone

United States, Iceland365 participantsStarted 2013-08

Plain-language summary

Assessment of Health-related Quality of Life in Rare Kidney Stone Formers in the Rare Kidney Stone Consortium

Who can participate

Age range5 Years

SexALL

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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

Inclusion Criteria: * Qualify to participate in one of the Rare Kidney Stone Registries. * Be at least 5 years old (for SF-10) * Are able to communicate using the English language * Consent to participate in the study (or "assent" if under 18 years old) * Have internet access with an email account or a valid home address Exclusion Criteria: None, if inclusion criteria are met

What they're measuring

Assessment of HRQoL in patients with rare kidney stones

Timeframe: Once a year for up to 5 years after signed consent

Trial details

NCT IDNCT02124395

SponsorNYU Langone Health

Sponsor typeOTHER

Study typeOBSERVATIONAL

Primary completion2022-07

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