Integrated Cancer Repository for Cancer Research

Bring these to your next appointment. They're a starting point for a shared conversation — not a sign you qualify or a recommendation to enrol.

1. 1This trial seems to be a registry study that collects data rather than testing a treatment — does that mean participating wouldn't change my actual cancer care or treatment plan in any way?
2. 2Since this is a data and tissue repository rather than a clinical trial testing a new therapy, what exactly would I be asked to contribute — things like blood samples, tissue, medical records — and how often would I need to come in?
3. 3My specific cancer type is listed among dozens of conditions in this registry, so how would my information actually be used, and would I ever have access to any findings that come from it?
4. 4Are there any privacy or data-sharing considerations I should be aware of before agreeing to have my medical and biological information stored in a web-based collaborative registry?
5. 5Given that this is a registry and not a treatment study, is there any reason you'd recommend I look into an active treatment trial alongside or instead of joining this one?

Generated to help you prepare — always confirm anything about your own eligibility and care with the study team and your doctor.