WithdrawnNot Applicable

Implications for Quality of Life and Quality of Care in Patients With Hereditary Haemochromatosis

Belgium0Started 2016-04

Plain-language summary

Patients with hereditary haemochromatosis will be interviewed/questioned about their Quality of life and the delivered quality of care in the hospital.

Who can participate

Age range18 Years

SexALL

See this in plain English?

AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

Inclusion Criteria: * phase 1: experts in the field of haemochromatosis (hepatologists, hematologists, endocrinologists, general practitioner, nurses, ...) * phase 2: patients with hereditary haemochromatosis, treatment with phlebotomy since 3 months, Dutch/English speaking Exclusion Criteria: * patients with secondary iron overload * phlebotomy treatment less than 3 months * language: no Dutch or English

What they're measuring

evaluation of quality of life

Timeframe: after 3 months of treatment

Trial details

NCT IDNCT01991925

SponsorUniversitaire Ziekenhuizen KU Leuven

Sponsor typeOTHER

Study typeOBSERVATIONAL

Primary completion2017-03

View on ClinicalTrials.gov More Hereditary Haemochromatosis trials