Stopped: Modification the study with a new questionnaire was not successful.
The constitutional lymphœdema is a rare disease with an annual incidence before the age of 20 years considered at 1,15/100 000. This chronic, incurable disease without hiring directly the prognosis for survival, alter the body image imposing a "visible" deformity and of which the treatment which aims at reducing and at stabilizing the physical deformation is binding and expensive. The lymphœdema is a crippling disease of the child. As such, it rings on the everyday life of the child and on the family environment. This question is all the more important, that all the studies show that the success of the treatment bases on the compliance in the concentration and in the care of hygiene. The parameters of the success of these treatments at the child are not known.
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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Validation of the metrological properties of questionnaire of quality of life LYMPHOQOL
Timeframe: 3 Years