CompletedNot Applicable

Palliative Care in Spinal Muscular Atrophy (SMA) 1

France39 participantsStarted 2012-06

Plain-language summary

The purpose of this study is to evaluate the quality of supportive and palliative care for SMA type 1 patients.

Age range1 Day – 1 Year

SexALL

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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

Inclusion Criteria: * SMA type 1 under 1 an * Genetic confirmation Exclusion Criteria: * No genetic confirmation * SMA type 1 over 1 year

%O2

Timeframe: until 2 years

NCT IDNCT01862042

SponsorAssistance Publique - Hôpitaux de Paris

Sponsor typeOTHER

Study typeINTERVENTIONAL

Primary completion2018-06-11