RecruitingNot Applicable

Institutional Registry of Haemorrhagic Hereditary Telangiectasia

Argentina590 participantsStarted 2010-01-01

Plain-language summary

The purpose of this study is to create an institutional and population-based registry of Haemorrhagic Hereditary Telangiectasia with a prospective survey based on epidemiological data, risk factors, diagnosis, prognosis, treatment, monitoring and survival. This study will also describe the occurrence of Haemorrhagic Hereditary Telangiectasia in the population of HIBA in the Central Hospital, as well as the characteristics of clinical presentation and evolution.

Who can participate

SexALL

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Inclusion criteria

✓. Patients with HHT defined.
✓. Followed in Unidad HHT of Hospital Italiano de Buenos Aires.

What they're measuring

morbidity

Timeframe: 1 year

Trial details

NCT IDNCT01761981

SponsorHospital Italiano de Buenos Aires

Sponsor typeOTHER

Study typeOBSERVATIONAL

Primary completion2025-05-19

Contact for this trial

Marcelo M Serra, MD

+541149590200 marcelo.serra@hospitalitaliano.org.ar

View on ClinicalTrials.gov More Haemorrhagic Hereditary Telangiectasia trials