UnknownNot Applicable

A Social Media Approach to Improve Genetic Risk Communication Phase I

United States49 participantsStarted 2013-02

Plain-language summary

The goal of this research study is to create an internet-based program designed to improve the communication of health and health history information among family members affected by Lynch syndrome.

Who can participate

Age range18 Years

SexALL

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Inclusion criteria

✓. At least 18 years of age
✓. Able to read and speak english
✓. Completion of genetic counseling and testing for a Lynch syndrome mutation
✓. Persons with positive (i.e., carrier of Lynch syndrome MMR mutation) as well as indeterminate test results

What they're measuring

Evaluation of Internet-Based Program Among Lynch Syndrome Family Members

Timeframe: 1 day

Trial details

NCT IDNCT01645904

SponsorM.D. Anderson Cancer Center

Sponsor typeOTHER

Study typeOBSERVATIONAL

Primary completion2020-02

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