TerminatedNot Applicable

The Dallas Hereditary Spherocytosis Cohort Study

Stopped: Insufficient staff to continue pursuing project

55 participantsStarted 2010-05

Plain-language summary

The purpose of this study is to 1. better characterize the short term and long term natural history of hereditary spherocytosis (HS) including diagnosis, complications, and indications for and response to splenectomy 2. evaluate and describe the health-related quality of life in children with HS.

Who can participate

Age range21 Years

SexALL

See this in plain English?

AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

Inclusion Criteria: * Diagnosis of HS with or without prior splenectomy * Age 0 - 21 years * Spanish-speaking subjects are eligible to participate Exclusion Criteria: * Unable to provide contact information for follow-up

What they're measuring

Health related quality of life

Timeframe: Approximately at 5 years

Trial details

NCT IDNCT01141621

SponsorUniversity of Texas Southwestern Medical Center

Sponsor typeOTHER

Study typeOBSERVATIONAL

Primary completion2013-05

View on ClinicalTrials.gov More Hereditary Spherocytosis trials