WithdrawnNot Applicable

Perceptions of Burden in Patients With Late-Stage Cancer and Their Caregivers

Stopped: Slow accrual

0Started 2008-05

Plain-language summary

RATIONALE: Gathering information over time about patients' sense of being a burden on their caregiver, and caregivers' sense of burden on themselves, may help doctors learn more about the desire to die in patients with late-stage cancer. PURPOSE: This clinical trial is studying perceptions of burden in patients with late-stage cancer and their caregivers.

Who can participate

Age range18 Years

SexALL

See this in plain English?

AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

DISEASE CHARACTERISTICS: * Meets 1 of the following criteria * Patient with a diagnosis of cancer * Confirmed late-stage disease refractory to standard primary therapy * Reside with a non-paid primary caregiver * Receiving care at the Cancer Institute of New Jersey * Caregiver * Must be at least 18 years old PATIENT CHARACTERISTICS: * Life expectancy ≥ 4 months * No documented or observable cognitive (e.g., dementia) or psychiatric (e.g., psychosis) problems that would interfere with study participation * Able to read and write English (patient and caregiver) PRIOR CONCURRENT THERAPY: * Not specified

What they're measuring

Relationship between patient's sense of being a burden on primary caregiver & increase in patient desire for hastened death (DHD) by Caregiver Demands Scale (CDS) at baseline & Schedule of Attitudes toward Hastened Death (SAHD) at 2 & 4 mo.

Contribution of the caregiver's sense of caregiver burden, as measured by the caregiver version of the CDS at baseline, on increases in patient DHD over time

Trial details

NCT IDNCT00770419

SponsorRutgers, The State University of New Jersey

Sponsor typeOTHER

Study typeOBSERVATIONAL

Primary completion2010-01

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