CompletedNot Applicable

The Health-Related Quality of Life in Patients With Hereditary Multiple Exostoses

Canada200 participantsStarted 2007-05

Plain-language summary

The purpose of this study is to assess the health-related quality of life of subjects who have Hereditary Multiple Exostoses and to develop a disease specific quality of life survey. The investigators hypothesize that there are a wide range of quality of life experiences for patients with this syndrome.

Who can participate

SexALL

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Inclusion Criteria: * Must be diagnosed with Hereditary Multiple Exostoses * Adult patients or parents of child patients

What they're measuring

SF-36 score for adults and CHQ PF-50 for children

Timeframe: No time frame

Trial details

NCT IDNCT00474448

SponsorUniversity of British Columbia

Sponsor typeOTHER

Study typeOBSERVATIONAL

Primary completion2014-02

View on ClinicalTrials.gov More Exostoses, Multiple Hereditary trials