Ondine Syndrome (Congenital Central Hypoventilation Syndrome)

Clinical trial pipeline · Data from ClinicalTrials.gov

See which Ondine Syndrome (Congenital Central Hypoventilation Syndrome) trials you may qualify for

Total trials

Actively recruiting

Phase 3 trials

Completed

Trial phase breakdown

Trial status

Actively recruiting — 2 trials

RecruitingNot Applicable

NCT03568669

Neurocognition in Congenital Central Hypoventilation Syndrome (CCHS)

Congenital central hypoventilation syndrome (CCHS) is a rare disorder of autonomic and respiratory regulation that frequently alters oxygen delivery to the brai…

United States1,000 participantsStarted 2016-01

Treatment: NIH Toolbox Cognition Battery

RecruitingNot Applicable

NCT06337149

Relationship Between Breathing and Attention in Children With Ondine Syndrome

Congenital central hypoventilation syndrome (CCHS) is a rare disorder of autonomic and respiratory regulation that alters oxygen delivery to the brain. CCHS pat…

France20 participantsStarted 2024-02-29

Treatment: neuropsychological tests used usually in clinical practice (TEA-ch, NEPSY, BRIEF) and research (Conners 3, K-CPT II or CPT III, Flankers Task)

All recent trials (6 shown)

Not Yet RecruitingNot Applicable

NCT07081464

Locus Coeruleus and CCHS (Congenital Central Hypoventilation Syndrome)

This study investigates whether cognitive dysfunction in young patients with congenital central hypoventilation syndrome (Ondine Syndrome) is related to the sev…

France25 participantsStarted 2025-10-15

Treatment: MRI, EEG, Pupillometry

CompletedNot Applicable

NCT01225679

Late-onset Congenital Central Hypoventilation Syndrome and the Mutation of Phox2B Gene

Congenital central hypoventilation syndrome (CCHS) is a rare disorder of respiratory control characterized by ventilatory impairment that results in arterial hy…

Brazil1 participantsStarted 2010-07

Treatment: positive airway pressure, Non-invasive mechanic ventilation

Ondine Syndrome (Congenital Central Hypoventilation Syndrome)

Trial phase breakdown

Trial status

Actively recruiting — 2 trials

Neurocognition in Congenital Central Hypoventilation Syndrome (CCHS)

Relationship Between Breathing and Attention in Children With Ondine Syndrome

All recent trials (6 shown)

Locus Coeruleus and CCHS (Congenital Central Hypoventilation Syndrome)

Late-onset Congenital Central Hypoventilation Syndrome and the Mutation of Phox2B Gene

Trial phase breakdown

Trial status

Actively recruiting — 2 trials

Neurocognition in Congenital Central Hypoventilation Syndrome (CCHS)

Relationship Between Breathing and Attention in Children With Ondine Syndrome

All recent trials (6 shown)

Locus Coeruleus and CCHS (Congenital Central Hypoventilation Syndrome)

Late-onset Congenital Central Hypoventilation Syndrome and the Mutation of Phox2B Gene

Assessment of Desogestrel in Ondine Syndrome

PHOX2B Mutation-Confirmed Congenital Central Hypoventilation Syndrome in A Chinese Family: Presentations From Newborn to…