Clinical trial pipeline · Data from ClinicalTrials.gov
See which Inclusion Body Myopathy With Early-onset Paget Disease and Frontotemporal Dementia trials you may qualify forThe investigators are researching families with inherited inclusion body myopathy (IBM) and/or Paget disease of bone (PDB) and/or dementia (FTD) which is also c…
CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, i…
A natural history study to understand the expected progression of disease in patients with confirmed mutations in the VCP gene over 1 year.
The VOICE Of bvFTD study is a telephone interview research study about life with or at risk for behavioral variant frontotemporal dementia (bvFTD). The study ai…