A Longitudinal Photo-Narrative Exploration of Hope During Phase 1/2 Clinical Trials For Pediatric Cancer

Inclusion Criteria: Patient participants must * Be 12 to 25 years of age. AND * Have a primary cancer diagnosis that is relapsed, refractory, or without curative standard-of-care options as follows: * 'Relapsed' disease is defined as disease recurrence following a prior complete or partial response to initial therapy. * 'Refractory' disease is defined as failure to achieve remission or response with standard upfront therapy. * Diagnoses will be considered 'without curative standard of care options' if there is no evidence-based curative treatment regimen or where standard therapies offer only palliative or non-curative intent (based on the assessment of the primary attending or division tumor board). AND * Be enrolled OR planning to enroll in a phase 1 or phase 2 trial for cancer-directed therapy.\* Patients will remain eligible until 4 weeks after they begin trial therapy, after which they are no longer eligible unless they subsequently enroll on a different clinical trial. Caregiver participants must * Be a parent or primary caregiver to a child of any age who * Has a primary cancer diagnosis that is relapsed, refractory, or without curative standard-of-care options AND * Is enrolled OR planning to enroll on a phase 1 or phase 2 trial for cancer-directed therapy.\* Parents will remain eligible until 4 weeks after their child begins trial therapy, after which they are no longer eligible unless their child subsequently enrolls on a different clinical trial…