Quality of End-of-Life Care for Children With Cancer (NCT07412002) | Clinical Trial Compass
Not Yet RecruitingNot Applicable
Quality of End-of-Life Care for Children With Cancer
1,190 participantsStarted 2026-09-21
Plain-language summary
This study examines the role of access to care, patient/family interactions with the healthcare system, and stress in explaining variations in quality of end of life care. The data collected from this study may help researchers develop a model for identifying patients at risk of low quality end of life care as well as recommendations for potential future interventions.
Who can participate
Age range18 Years
SexALL
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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Inclusion Criteria:
* Index Child (COG Registered Patient):
* Must be deceased
* \< 18 years old at time of death
* Diagnosed with any oncologic condition
* History of enrollment on Stratum 1 of APEC14B1, Project:EveryChild
* Note: history of treatment on a COG therapeutic trial is not required
* Resided in the United States, including Puerto Rico, as evidenced by most recent address, at the time of death
Bereaved Parent(s):
* Must be a parent, legal guardian, or caregiver (biological or non-biological) of an eligible Index Child enrolled on APEC14B1 with current Consent to Future Contact (e.g., from the APEC14B1 Part B Consent)
* Self-reported confirmation of familiarity with the care received by the Index Child in the last month of their life
* Bereaved parent must understand English or Spanish (written and/or spoken)
* Must be a parent/guardian/key contact from the Index Child's APEC14B1 Future Contact study record or must be referred by one of the APEC14B1 contacts
* Bereaved parent must be \>= 18 years old at the time of ALTE24C1 study enrollment
Regulatory Requirements:
* Bereaved parent must provide verbal or implied informed consent
* For all participants, all institutional, FDA, and NCI requirements for human studies must be met
What they're measuring
1
Quality of end of life (EOL) care
Timeframe: Up to study completion, an average of 4 years