The purpose of this randomized controlled pilot study is to develop and evaluate an online diagnosis disclosure support intervention for caregivers of 7- to 12-year-old children with autism spectrum disorder (ASD) in South Korea. This intervention is designed to support caregivers who are contemplating, preparing for, or carrying out disclosure of their child's ASD diagnosis to the child. This study has three primary aims: (1) to evaluate the acceptability and feasibility of the intervention; (2) to examine clinically meaningful effects of the intervention on caregivers' psychological well-being and psychosocial adjustment (e.g., emotion regulation, loneliness/social isolation, and adaptation to life transitions), parenting competence and attitudes (e.g., parenting self-efficacy, parenting role satisfaction, and parenting stress), and autism-related knowledge and social perceptions (e.g., autism knowledge and perceived autism-related stigma); and (3) to assess whether the effects of the intervention are maintained one month after program completion.
See this in plain English?
AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Parental Autism Disclosure Scale (PADS)
Timeframe: baseline, immediately after the intervention, 1-month follow-up
Decisional Conflict Scale (DCS)
Timeframe: baseline, immediately after the intervention, 1-month follow-up
Diagnosis Disclosure Support Intervention Program Acceptability Survey
Timeframe: immediately after the intervention
Diagnosis Disclosure Support Intervention Program Feasibility Survey
Timeframe: immediately after the intervention
Participation Survey
Timeframe: during each of the five sessions (weeks 1 to 5) in intervention program
Intervention Fidelity Checklist
Timeframe: every 3 months from the start of the intervention for each therapist