The primary goal of CP-MOVES is to evaluate 1) the preliminary efficacy of a telehealth-delivered, parent coaching intervention in the use of adaptive standers, on physical activity, sleep, and endurance in young children with severe motor delays and 2) on physical activity, sedentary time, resting heart rate, and perceived stress in parents. The main questions the study aims to answer include: 1. Do measures of physiological fitness and sleep in children with severe motor delays (i.e., unable to stand without support) change after a therapist-directed, parent-delivered intervention using telehealth and adaptive standers? 2. Do parents report any changes in their child's endurance, participation, or quality of life OR parent stress following intervention? Children ages 1-6 years old with severe motor delay and one parent will: 1. Complete three 30 minute sessions of standing in an adapted stander per week for 8 weeks. One session per week will be completed with a physical therapist, delivered through telehealth and two sessions per week will be completed as a home program with the parent and child (no therapist or telehealth). 2. Wear activity tracker sensors on the wrist(s) and waist for one-week before and after treatment. 3. Complete questionnaires about the child's endurance, participation, and quality of life and the parent's stress, before and after treatment. 4. Complete an assessment of postural control before and after treatment. 5. Complete an post-treatment interview
Age range
1 Year – 6 Years
Sex
ALL
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Wearable sensor physical activity data: Vector Magnitude
Timeframe: For 7 days before 8 week intervention begins and 7 days after 8-week intervention ends.
Wearable sensor physical activity data: Daily Activity Counts
Timeframe: For 7 days before 8 week intervention begins and 7 days after 8-week intervention ends.
Wearable sensor physical activity data: Average Resting Heart Rate
Timeframe: For 7 days before 8 week intervention begins and 7 days after 8-week intervention ends.
Wearable sensor physical activity data
Timeframe: For 7 days before 8 week intervention begins and 7 days after 8-week intervention ends.
Sleep wearable sensor data: total sleep time
Timeframe: For 7 days before 8 week intervention begins and 7 days after 8-week intervention ends.
Sleep wearable sensor data: Sleep Latency
Timeframe: For 7 days before 8 week intervention begins and 7 days after 8-week intervention ends.
Sleep wearable sensor data: Sleep efficiency
Timeframe: For 7 days before 8 week intervention begins and 7 days after 8-week intervention ends.