Dystonia is the most common movement disorder in the pediatric population after spasticity. It can affect normal motor development and cause significant motor retardation. The presence of dystonia may affect motor function, pain, and ease of care in CP. Additionally, it can cause serious difficulties in daily living activities and social participation and long-term joint deformity. The increase in the severity of dystonia in CP children with secondary dystonia may affect the quality of life, activity and participation of the children, as well as the caregiver. The importance of caregivers is an undeniable fact, especially in these patient groups. This study aims to investigate the burden of dystonia severity on the participation in daily living activities and caregivers of children with CP with secondary dystonia.
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The Barry-Albright Dystonia Scale (BADS)
Timeframe: baseline
The Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD)
Timeframe: baseline
The Care and Comfort Hypertonicity Questionnaire (CCHQ)
Timeframe: baseline