The goal of this study is to find the best way to help people with primary mitochondrial disease deal with the stress of their condition, and to help these people be better able to "bounce back," or be resilient. In order to do this, the investigators are going to test two interventions (an intervention means that it aims to change something): Promoting Resilience in Stress Management (PRISM) and clinical-focused narrative (CFN) intervention.
Age range
18 Years
Sex
ALL
See this in plain English?
AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Bring these to your next appointment. They're a starting point for a shared conversation — not a sign you qualify or a recommendation to enrol.
Generated to help you prepare — always confirm anything about your own eligibility and care with the study team and your doctor.
The trial coordinator is the person who runs the study day to day. These cover the practical side — logistics, costs, and what taking part would actually mean for your life. The study team confirms whether you meet the criteria; these are questions to ask, not a sign you qualify.
A starting point for the conversation — always confirm anything about your own eligibility, costs, and care with the study team and your doctor.
Determine mean score on validated scale assessing resilience in those who receive PRISM and those who receive CFN.
Timeframe: Up to 3 months after the first intervention
Determine change in mean in scores on validated scale assessing resilience between those who receive PRISM and those who receive CFN.
Timeframe: Up to 3 months after the first intervention
Determine variability in scores on validated scale assessing resilience between those who receive PRISM and those who receive CFN.
Timeframe: Up to 3 months after the first intervention
Determine mean scores on validated scale assessing coping in those who receive PRISM and those who receive CFN.
Timeframe: Up to 3 months after the first intervention
Determine change in mean scores on validated scale assessing coping between those who receive PRISM and those who receive CFN.
Timeframe: Up to 3 months after the first intervention
Determine variability in scores on a validated scale assessing coping between those who receive PRISM and those who receive CFN.
Timeframe: Up to 3 months after the first intervention
Determine mean scores on validated scale assessing quality of life in those who receive PRISM and those who receive CFN.
Timeframe: Up to 3 months after the first intervention
Determine change in mean in scores on validated scale assessing quality of life between those who receive PRISM and those who receive CFN.
Timeframe: Up to 3 months after the first intervention
Determine variability in scores on a validated scale assessing quality of life between those who receive PRISM and those who receive CFN.
Timeframe: Up to 3 months after the first intervention