The goal of this study is to find the best way to help people with primary mitochondrial disease deal with the stress of their condition, and to help these people be better able to "bounce back," or be resilient. In order to do this, the investigators are going to test two interventions (an intervention means that it aims to change something): Promoting Resilience in Stress Management (PRISM) and clinical-focused narrative (CFN) intervention.
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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Determine mean score on validated scale assessing resilience in those who receive PRISM and those who receive CFN.
Timeframe: Up to 3 months after the first intervention
Determine change in mean in scores on validated scale assessing resilience between those who receive PRISM and those who receive CFN.
Timeframe: Up to 3 months after the first intervention
Determine variability in scores on validated scale assessing resilience between those who receive PRISM and those who receive CFN.
Timeframe: Up to 3 months after the first intervention
Determine mean scores on validated scale assessing coping in those who receive PRISM and those who receive CFN.
Timeframe: Up to 3 months after the first intervention
Determine change in mean scores on validated scale assessing coping between those who receive PRISM and those who receive CFN.
Timeframe: Up to 3 months after the first intervention
Determine variability in scores on a validated scale assessing coping between those who receive PRISM and those who receive CFN.
Timeframe: Up to 3 months after the first intervention
Determine mean scores on validated scale assessing quality of life in those who receive PRISM and those who receive CFN.
Timeframe: Up to 3 months after the first intervention
Determine change in mean in scores on validated scale assessing quality of life between those who receive PRISM and those who receive CFN.
Timeframe: Up to 3 months after the first intervention
Determine variability in scores on a validated scale assessing quality of life between those who receive PRISM and those who receive CFN.
Timeframe: Up to 3 months after the first intervention