Systematic sclerosis (SSc) is a potentially severe disease characterized by various visceral involvements including lung. The investigators hypothesize that a respiratory rehabilitation program specifically designed for people with systematic sclerosis with early lung disease could help to decrease respiratory deficiencies, improve aerobic capacity and prevent activity limitations and participation restrictions. Before testing the effectiveness of such a program, a pilot study is needed to assess its feasibility and optimize its content. Participants will have 1 supervised session in the outpatient rehabilitation department. Each patient will then perform the home personalized exercises program for 3 months. The feasibility of the program will be assessed at 3 months using patients' adherence to the program (assessed by the number of lost to follow-up, the number of questionnaires not completed, the amount of aerobic activity and the amount of home personalized exercises, treatment burden, adverse effects and quality of life.
Age range
18 Years – 65 Years
Sex
ALL
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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
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Generated to help you prepare — always confirm anything about your own eligibility and care with the study team and your doctor.
The trial coordinator is the person who runs the study day to day. These cover the practical side — logistics, costs, and what taking part would actually mean for your life. The study team confirms whether you meet the criteria; these are questions to ask, not a sign you qualify.
A starting point for the conversation — always confirm anything about your own eligibility, costs, and care with the study team and your doctor.
Number of lost to follow up patients
Timeframe: 3 months
Number of uncompleted questionnaires
Timeframe: 3 months
Amount of aerobic work recorded using a connected watch
Timeframe: 3 months
Amount of exercises self-reported in a logbook
Timeframe: 3 months
Exercise Adherence Rating Scale (EARS) questionnaire
Timeframe: 3 months
Self-reported adherence
Timeframe: 3 months
Exercise Adherence Rating Scale (EARS) questionnaire
Timeframe: 3 months
Treatment burden assess by the Exercise Therapy Burden Questionnaire (ETBQ)
Timeframe: 3 months
Check-list to report side effects
Timeframe: 3 months