Attention-deficit/hyperactivity disorder (ADHD), is a highly genetic and complex neurological disorder, where disruptive behavior, emotional imbalance, and lack of attention can interrupt with normal development of adolescents, self-awareness, and self-regulation in a way that has an impact on the family unit. Effective family intervention programs, that empower resilience and strength, to cope with the stressful situation from ADHD, are therefore needed. Nevertheless, there is a lack of knowledge regarding what type of interventions are the most effective for these families. As well as, little is known about the benefits of family-level intervention for families of adolescents with ADHD at outpatient care and what amount of combination in an intervention is appropriate. Psychiatric advanced practical nurse (APN) practitioners are in a key role to offer such an intervention. Therefore, the aim of this pilot study is to evaluate the feasibility of offering a family-level intervention, for parents of 13-17 years old adolescents with ADHD, at a Children and Adolescents' Psychiatric Outpatient Unit (BUGL). Also, to evaluate if the intervention, which consists of group educational sessions, family sessions, and access to evidence-based information's on ADHD, fitted the families. A nurse-led educational and support intervention will be offered for parents of adolescents with ADHD once a week over a 5-week time period. First, there will be offered three group support sessions, with information about the general impact of the ADHD disorder on the family's daily life. Second, two special therapeutic conversations and support interviews will be offered to each family, where each parent can discuss their daily situation specifically and its impact on the family as a whole. Third, caregivers will have access to about 140 pages of evidence-based material on a closed website (pan pale) regarding the ADHD disorder in adolescents and its impact on the family. The outcome of this process will help in determining the feasibility of subjecting the intervention to a more expensive and time-consuming randomized controlled trial (RCT) study.
See this in plain English?
AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Iceland-Family Perceived Support Questionnaire (ICE- FPSQ).
Timeframe: T1 (at baseline in experimental group).
Iceland-Family Perceived Support Questionnaire (ICE- FPSQ).
Timeframe: T2 (post-intervention in experimental group, 6 weeks from T1)
Iceland-Family Illness Beliefs Questionnaire (ICE-FIBQ)
Timeframe: T1 (at baseline in experimental group).
Iceland-Family Illness Beliefs Questionnaire (ICE-FIBQ).
Timeframe: T2 (post-intervention in experimental group, 6 weeks from T1).
Iceland-Expressive Family Functioning Questionnaire (ICE-EFFQ).
Timeframe: T1 (at baseline in experimental group).
Iceland-Expressive Family Functioning Questionnaire (ICE-EFFQ).
Timeframe: T2 (post-intervention in experimental group, 6 weeks after baseline).
Treatment Evaluation Questionnaire
Timeframe: T2 (post-intervention in experimental group, 6 weeks after baseline).
Coping health inventory for parents (CHIP)
Timeframe: T1 (at baseline in experimental group).
Coping health inventory for parents (CHIP)
Timeframe: T2 (post-intervention in experimental group, 6 weeks after baseline).
The General Well-Being Schedule (GWBS)
Timeframe: T1 (at baseline in experimental group).
The General Well-Being Schedule (GWBS)
Timeframe: T2 (post-intervention in experimental group, 6 weeks after baseline).
The PedsQL-Family Impact Module.
Timeframe: T1 (at baseline in experimental group).
The PedsQL-Family Impact Module.
Timeframe: T2 (post-intervention in experimental group, 6 weeks after baseline).
Attention-deficit Hyperactivity Disorder Rating Scale - IV (ADHD-RS)
Timeframe: T1 (at baseline in experimental group).
Attention-deficit Hyperactivity Disorder Rating Scale - IV (ADHD-RS)
Timeframe: T2 (post-intervention in experimental group, 6 weeks after baseline).
Disruptive Behavior Rating Scale (DBRS)
Timeframe: T1 (at baseline in experimental group).
Disruptive Behavior Rating Scale (DBRS)
Timeframe: T2 (post-intervention in experimental group, 6 weeks after baseline).
Rosenberg Self-Esteem Scale
Timeframe: T1 (at baseline in experimental group).
Rosenberg Self-Esteem Scale
Timeframe: T2 (post-intervention in experimental group, 6 weeks after baseline).
Perlin´s Self-Mastery Scale
Timeframe: T1 (at baseline in experimental group).
Perlin´s Self-Mastery Scale
Timeframe: T2 (post-intervention in experimental group, 6 weeks after baseline).
Background for parents questionnaire
Timeframe: T1 (at baseline in experimental group).
Background questionnaire for adolescents'
Timeframe: T1 (at baseline in experimental group).