The data to be collected is intended to help healthcare providers make important medical and financial decisions concerning FSHD1, through an enhanced understanding of the prevalence, progression and natural history of FSHD1.
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PFGE-based Southern blotting
Timeframe: From date of randomization until the date of first documented progression or date of death from any cause, whichever came first, assessed up to 20 years
The FSHD Clinical Score
Timeframe: From date of randomization until the date of first documented progression or date of death from any cause, whichever came first, assessed up to 20 years