Stopped: PI request due to a lack of coordinator availability for study procedures.
Dystonia is a disorder characterized by excessive involuntary contraction of muscles with repetitive and patterned movements. The primary focal dystonias are the most common type of dystonia and include Limb dystonias (like writer's cramp), Cervical dystonia (spasmodic torticollis), Laryngeal dystonias (like spasmodic dysphonia), and Craniofacial dystonias (like blepharospasm). The purpose of this study is to create resources to help learn more about the primary focal dystonias and to develop and validate various dystonia rating scales.
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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
To collect clinical data for future studies that will help to understand the varied clinical manifestations, natural history, and pathogenesis of the dystonias.
Timeframe: Through study completion, an average of two years.
To create a biospeciman repository as a resource for future research in dystonia and related diseases
Timeframe: Through study completion, an average of two years.
To develop and validate rating scales that can be used to diagnose different forms of dystonia and monitor their severity over time
Timeframe: Through study completion, an average of two years.